Sole to Soul

17 10 2013

Hayleigh in pinkI met and photographed Hayleigh (left) and her lovely family in D.C. at HLAA Convention 2011. Hayleigh started her business, Hayleigh’s Cherished Charms, making hearing aid and cochlear implant ear “charms” and the whole family is involved in her venture. You can learn more about Hayleigh and her thriving business in my blog post here.

Please consider donating to their Sole to Soul fundraising campaign! Their goal is to raise $30,000 to buy 1200 pairs of shoes for children in Kenya whose school/dormitory recently burned down, forcing them to return to their homes in the slums of Kenya. They have raised $5,000 so far from babysitting, bake sales and other fundraising efforts. They plan to purchase the shoes in Kenya to support the local economy and will hand deliver them to the children in need.

And while you’re at it, send out a prayer and good thoughts of continued healing for Hayleigh, who is in the hospital in critical but stable condition.





Hearing Loss Magazine: 2012 Recap

28 11 2012

The last issue in 2012 of the Hearing Loss Magazine (HLM), published by the Hearing Loss Association of America (HLAA), just arrived in member mailboxes last week. I design the bimonthly magazine and provide photography services to HLAA. Here is a recap of the issues published in 2012.

Tina and Tom Hamblin were the cover feature for the January/February 2012 issue. Tina contacted me in fall 2010 after seeing the wedding photos I shot for Todd and Abbie Hlavacek in September 2010. Todd and Abbie are also members of HLAA and Abbie wrote her cover story for the May/June 2008 issue (recapped here). Cover photo © Cindy Dyer

I first met Tina and Tom when they arrived for their engagement photo session at my favorite location to shoot, Green Spring Gardens, in Alexandria, VA in spring 2011. After we did our portraits around the garden, Tom started doing cartwheels (he’s a gymnastics coach) and I captured him in full motion—making it the first time I’ve ever photographed someone doing anything gymnastic. I captured him in his wedding finery doing some handstands and cartwheels on his wedding day as well! My colleague Ed and I photographed Tina and Tom’s wedding on October 8, 2011 in Kurtz Beach, Maryland.

I asked Tina and Tom if they would write a sort of “his and her” story for the magazine about their respective hearing loss, how they met, and how they support each other. The title of their article, “Taking the plunge,” refers to both the turning point in their friendship and their recent marriage. You can find Tina blog’s here and Tom’s all-things-gymnastic blog here. Their cover story is available in pdf format here: Tom&TinaHamblin Feature

Also in this issue: Audiologist Brad Ingrao focused on the best practices for hearing assessment and hearing aid fitting in Getting it Right the First Time: Best Practices in Hearing Aid Fitting; Gael Hannon showed us a practical look at information that would be helpful to those who have hearing loss in What the Professionals Should Tell Us; Michael Ann Bower discussed what people with hearing loss can do to avoid the misdiagnosis of dementia when hearing loss is the issue in Hearing Loss and Dementia; and Barbara Kelley interviewed young jazz singer Mandy Harvey in Musically Inclined.

The March/April issue featured the host city for the upcoming Convention 2012—Providence, Rhode Island. HLAA’s Director of Marketing and Events, Nancy Macklin, presented a comprehensive guide to the upcoming convention in this issue.

Also in this issue: Audiologist Brad Ingrao discussed cochlear implants in Plugged in for Sound: Cochlear Implants Today; Scott Bally outlined the Five Most Effective Speechreading Strategies; Renowned audiologist Mark Ross talked about hi HealthInnovations Hearing Aid Dispensing Program; Meredith Low, a pro at planning and making sure that the communication environment is arranged so she can enjoy the party as much as her guests, offered great tips in Welcome! Easy Entertaining for People with Hearing Loss; Pamela Selker Rak shared her experiences with hearing loss in Lost in Translation: How a “Lost and Found” Friendship Opened My Eyes to Hearing Loss; Lise Hamlin focused on HLAA’s efforts in Advocacy: A Few Hot Issues, and HLAA member Netegene Fitzpatrick crafted a special Word Search puzzle for her fellow members to solve.

Richard Einhorn, award-winning composer, was the cover feature for the May/June 2012 issue. In his article, Einhorn wrote about his sudden hearing loss and how, with his clever uses of existing technology, he continues to work and live well with hearing loss. You can read excerpts on my blog post here. For the full article, click on this link: Richard Einhorn

I had the honor and pleasure of photographing Richard in March 2012. Barbara Kelley (HLM’s editor-in-chief) and I met up with him at the Peabody Conservatory in Baltimore. After a great photo session, we dropped Richard off at his hotel and picked him up later to take him to the Meyerhoff, where his work, Voices of Light, was being performed by the Baltimore Symphony Orchestra, with Marin Alsop conducting. Einhorn composed the piece in 1994, inspired by the 1928 silent film, The Passion of Joan of Arc, directed by Carl Theodor Dreyer. Live performances accompany a screening of the film.

Voices of Light has been performed more than 200 times by major orchestras all over the world. It has been called “a great masterpiece of contemporary music” and “a work of meticulous genius.” The libretto is based on excerpts from a variety of ancient writings, most of it from Medieval female mystics, and scored for a small orchestra, chorus and soloists. For me, the performance was a haunting, incredibly moving and very profound visual and aural experience. You can learn more about Richard Einhorn on his website here. Cover photo © Cindy Dyer

Also in this issue: Barbara Kelley interviewed Richard Einhorn to learn more about his work and future projects; Therese Walden, president of the American Academy on Audiology, discussed the UnitedHealthcare® hi HealthInnovations hearing device benefit program in Self-Diagnosis, Self-Treatment: The Wave of the Future?; Brad Ingrao wrote about water-resistant hearing aids and cochlear implants in Jump Right In! Water-Resistant Hearing Technology; Lise Hamlin revisited the Americans with Disabilities Act 22 years later in Accessible Design for People with Hearing Loss; and Yoona Ha revealed the special bond with her grandmother in My Six-Million-Dollar Grandmother.

Laurie Pullins was the cover feature for the July/August 2012 issue. Back in February, right before my photography exhibit (Garden Muse: A Botanical Portfolio) opened at Green Spring Gardens, Laurie sent me a message that she would love to come see it in person (she’s been a big supporter and fan of my work for a few years now) and she was trying to coordinate a time when she could accompany her husband to the Washington, D.C. area on a business trip. It so happens that I had been catching up with her blog, Dance with Sound, and had just suggested to Barbara that we entice Laurie to write for the magazine. I pitched the idea to Laurie and said that if she could come up to see my show anytime in March or April, I could shoot the portraits of her for the feature then. We wanted to keep it a secret from even her closest friends so that she could surprise them; only her husband and children knew about it. Cover photo © Cindy Dyer

Laurie is as beautiful on the inside as she is on the outside and I am thrilled that she has a spotlight in the magazine with beautiful photos and her honest and inspiring writing. See Laurie’s feature on my blog post here or download the pdf here: Laurie Pullins Feature

Also in this issue: Brad Ingrao helps you understand your hearing loss and what you need to hear better in Beyond the Beeps: Needs Assessments and Outcome Measures; Lisa and Des Brownlie shared their experiences of their babies born with hearing loss in Two Children, Two Hearing Losses; Sam Trychin discussed research that has uncovered information about another built-in, inherited type of pain that also has survival value—social pain—in Hearing Loss and Social Pain; Lisa Tseng of hi HealthInnovations shows the company’s model for how to reach those who need hearing help in Accessible and Affordable Hearing Health Care; HLAA’s Director of Public Policy, Lise Hamlin, reveaks her personal experiences resulting from the fruits of HLAA’s labor in Newborn Hearing Screening: A Success Story; and Viola LaBounty expresses her improved hearing loss through her poem, Digital Technology: My World Alive.

Melissa Puleo Adams, a former San Diego Chargers cheerleader, was our cover feature for the September/October 2012 issue. I had the opportunity to meet and photograph Melissa when she was visiting her family here in Virginia in May. The title of her feature, Sixth Time’s a Charm, is in reference to her trying out six times to be a Charger Girl cheerleader. She persevered despite the rejections and made it on the sixth try. Her fellow Charger Girls were very supportive of her and her hearing loss. Melissa owns her own web and graphic design firm in California. You can see her web design work hereCover photo © Cindy Dyer  (Read Melissa’s full feature in my blog post here.)

Also in this issue: Audiologist Brad Ingrao provided an in-depth look at three alternative hearing systems in Middle Ear Implants and Bone Conduction Hearing Devices; HLAA’s Director of Marketing and Events, Nancy Macklin, revealed highlights in her Convention 2012 Wrap-up; Susan Clutterbuck wrote about the results of the EARtrak survey and if they reveal whether or not consumers’ opinions are being heard by their hearing health care providers in Improving Health Care—Make Your Voice Heard!; Ronnie Adler shared great stores about how Walk4Hearing Funds are put to good use in local communities in Rewarding Great Ideas—The Benefits of the Walk4Hearing; and Scott J. Bally showed how NVRC is changing lives in the community in NVRC: A Model Community Center Improving Communication.

Marisa Sarto was the cover feature for the November/December 2012 issue. I met Marisa in Providence, R.I. this past June during HLAA Convention 2012. I was going to profile her for our Seen & Heard column but after learning about her photo book project, we decided to make her autobiographical story a main feature for the magazine. I photographed her one afternoon in a park near the hotel. Cover photo © Cindy Dyer

Marisa’s inspiration for her book-in-progress, Hear Nor There: Images of an Invisible Disability, came from her experiences as a woman growing up with a hearing loss that made her feel self-conscious and set apart from others. The project will be a documentary monograph, showcasing photographs and stories of individuals of varying ages, ethnicities and genders and their challenges of living with a hearing loss. Learn more about the project on her website here and sample images and narratives here. Download and read her feature article here: Marisa Sarto Feature

Also in this issue: Audiologist Brad Ingrao’s article, Better Hearing, Better Health, explored the relationship between hearing loss and health-related quality of life; HLAA’s Director of Marketing and Events, Nancy Macklin, showed us why It’s Time to Head West! with her Convention 2013 Sneak Preview; Hayleigh Scott, owner of Hayleigh’s Cherished Charms, and Netegene Fitzpatrick proved there isn’t a generation gap among people with hearing loss in their feature, A Unlikely Friendship; HLAA’s Director of Public Policy, Lise Hamlin, reported good news in Shopping for Phones; long-time HLAA member Vern Thayer explained why he is Lucky that he discovered HLAA in 1983; and HLAA members George Kosovich and Marisa Sarto were both profiled in Seen & Heard.

 





Hayleigh Scott and Netegene Kirkpatrick: An Unlikely Friendship

14 11 2012

HLAA Members Hayleigh Scott and Netegene Kirkpatrick co-authored “An Unlikely Friendship” for the November/December 2012 issue of Hearing Loss Magazine, published bimonthly by the Hearing Loss Association of America (HLAA). I photographed the feature photo of them at HLAA’s annual conference this past June in Providence, R.I.

With the help of her mom, dad and sisters, Hayleigh started her own business, Hayleigh’s Cherished Charms, where she and her family create hearing aid scrunchies, tube twists, charms and patented clasp ideas for hearing aids and cochlear implants—allowing those with hearing loss to highlight their hearing instruments rather than hiding them. Ten percent of proceeds go to furthering hearing research and education of the hard of hearing and deaf community. Hayleigh first appeared in the January/February 20122 issue of Hearing Loss Magazine, and when Netegene read her story, she e-mailed her and they became fast friends.

Photo © Cindy Dyer. All rights reserved.

An Unlikely Friendship

by Hayleigh Scott and Netegene Fitzpatrick

Is there really a generation gap among people with hearing loss? We don’t think so. Here, 13-year-old Hayleigh Scott and 68-year-old Netagene Kirkpatrick share how they bridged the gap while a strong friendship grew. They joined forces to help reduce the stigma of hearing loss, spread awareness, and are having fun doing it.

Meeting Netagene by Hayleigh Scott

Netagene and I first met through my business website when Netagene e-mailed me saying she had read about me in Hearing Loss Magazine. She liked what I was doing and ordered some hearing aid charms. I thought it was great that Netagene was interested in being a model of my charms. I have many adult charm buyers but usually it’s the kids who send in pictures wearing their charms. Netagene was willing to put her photo on my website’s customer page. We became pen pals and I learned that she really feels the same way I do about hearing aids and glasses—we both want to have fun!

Netagene and I met in person at HLAA Convention 2011 in Washington, D.C. We talked for a while and got to know each other even better! Then we began sending each other little gifts. She even found pretty beads that she liked and she sent them to me with instructions on how she would like me to make them into charms for her.

One of the hardest things about having my own business is letting people know that I exist. Netagene has been so helpful in sharing what I do with others; she hands out my business cards, wears my charms, was interviewed by a newspaper in her home state of Alabama mentioning my business, and talks about the philosophy that we share. (We are not embarrassed to wear fancy glasses, so let’s make our hearing aids sparkle and shine!)

We kept in touch over the course of the next year updating each other with new things going on in our lives. Then Netagene’s mother died. I sent her a surprise pair of cross charms to wear to the funeral. We then saw each other this past June at the HLAA Convention in Providence, Rhode Island. It was so nice to get to see each other again! The last night of the convention we went out to dinner together and talked about the convention and lots of other things. Netagene is not just one of my favorite customers—she is one of my favorite people. Thank you HLAA for sharing what I do and for helping an unlikely friendship form.

Hayleigh Scott is an HLAA member and entrepreneur from Hollis, New Hampshire, and has exhibited at the last two HLAA Conventions. Her website is HayleighsCherishedCharms.com. Check out her Customer Photos page to see all the happy people, including Netagene.

Meeting Hayleigh by Netagene Kirkpatrick

There was an article about Hayleigh Scott and her business in the January/February 2011 Hearing Loss Magazine. I like to help others—in particular, young people—so I immediately looked up the website for Hayleigh’s Cherished Charms.

As the user of a long white cane (I am high-partial legally blind since 2003), I learned not to be ashamed of carrying one of those, of letting others see and know that I am imperfect. Some friends put a ribbon or some bells on their canes. One year, I taped a string of tiny battery-powered Christmas lights on my cane. Besides, people show off fancy eyeglasses that they wear, so why be ashamed to let others know that you need aids to see, to walk … and to hear!

That’s Hayleigh’s—and my—philosophy about wearing hearing aids. She had written my thoughts on her website, but she went a step farther. She did something about it when she was five years old at that! She started making charms. I went to her website and I immediately ordered the Dragonfly and the Red Cyclops Charms. (So what if I am 68 years old!)

When I got to the hotel in Crystal City for the HLAA Convention 2011, the first thing I did after checking into the hotel, even though I looked like something the cat had drug in (after a long train ride, plus dealing with the Washington, D.C. Metro), was to look for Hayleigh’s Cherished Charms in the Exhibit Hall. I met Hayleigh, her sisters Vienna and Sarah, and their mother Rachel. Sweet! Hayleigh and Rachel both are good about e-mailing their customers. I am not a cuddly, hugging kind of person, but that family is one that even I wanted to take in my arms and hug.

I learned their favorite colors and crocheted little bitty purses for all three girls. I’ve also bought little stuffed animals for them. I wish I could afford to buy more of the charms they make. I’ve mailed some strings of beads to Hayleigh and asked her to make me one pair and then use the rest to make others to sell.

When my mother passed away in 2011 at age 94, Hayleigh made a pair of cross hearing aid charms which arrived the day of my mother’s viewing. I had also told her about some of my past exploits, such as having been a DJ and having ridden a motorcycle. She also made a pair of hearing aid charms for me with a motorcycle on it! I didn’t ask for either pair so both were a surprise.

I keep my hair pulled back so that people can see my charms, and when someone mentions my “pretty earrings,” I take off one of my hearing aids to show them off. I keep a few of Hayleigh’s business cards on hand and give them away. I’ve shown my hearing aid charms to my audiologist and put some of Hayleigh’s cards in the waiting room of the hearing clinic.

I march to the tune of my own drummer and don’t like to be a cookie-cutter person; I like being a bit of a maverick—being unique. And, like Hayleigh and her family, I am proud of who I am and I’m not ashamed to let others know that just like I need aids to see, I also need aids to hear. Maybe amongst Hayleigh, HLAA and I, we can educate some people!

Netagene Kirkpatrick is an HLAA member from Birmingham, Alabama and has attended the last two HLAA Conventions.

Join the Hearing Loss Association of America!
Do you have a hearing loss or know someone who does? Consider membership in the Hearing Loss Association of America. Student annual dues are $20, individual annual dues are $35, and family/couple annual dues are $45. Fees outside the U.S. are slightly higher. All memberships include discounts on hearing-related products, convention and special event early bird discounts, AVIS and Alamo car rental, and the award-winning Hearing Loss Magazine. Sign up for membership here.





Marisa Sarto: The Hear Nor There Project

14 11 2012

Marisa Sarto wrote the cover feature article for the November/December 2012 issue of Hearing Loss Magazine, published bimonthly by the Hearing Loss Association of America (HLAA). Marisa recently graduated from the University of Wisconsin-Madison with a degree in film on a Posse Foundation scholarship. She has worked as an intern for an acclaimed documentary artist and as an intern for a television production company and is currently pursuing her passion—photography and photo/visual journalism—in Los Angeles.

I met Marisa in Providence, R.I. this past June during the Hearing Loss Association of America annual convention. I was going to profile her for our Seen & Heard column but after learning about her photo book project, we decided to make her story a main feature for the magazine. I photographed her one afternoon in a park near the hotel.

Marisa’s inspiration for her book-in-progress, Hear Nor There: Images of an Invisible Disability, came from her experiences as a woman growing up with a hearing loss that made her feel self-conscious and set apart from others. The project will be a documentary monograph, showcasing photographs and stories of individuals of varying ages, ethnicities and genders and their challenges of living with a hearing loss. Learn more about the project on her website here and sample images and narratives here.

Download and read her feature article for Hearing Loss Magazine here: Marisa Sarto Feature

Also in this issue: Audiologist Brad Ingrao’s article, Better Hearing, Better Health, explores the relationship between hearing loss and health-related quality of life; HLAA’s Director of Marketing and Events, Nancy Macklin, shows us why It’s Time to Head West! with her Convention 2013 Sneak Preview; Hayleigh Scott, owner of Hayleigh’s Cherished Charms, and Netegene Fitzpatrick prove there isn’t a generation gap among people with hearing loss in their feature, An Unlikely Friendship; HLAA’s Director of Public Policy, Lise Hamlin, reports good news in Shopping for Phones; long-time HLAA member Vern Thayer explains why he is Lucky he discovered HLAA in 1983; and HLAA members George Kosovich and Marisa Sarto are both profiled in Seen & Heard.

Photo © Cindy Dyer. All rights reserved.


Marisa is helping spread the word about “100 Portland,” a movement to recruit 100 young adults with hearing loss to gather at the HLAA Convention 2013 in Portland, Oregon. Check out the video below to learn about Marisa’s experience at Convention 2012 in Providence, Rhode Island and an introduction to “100 Portland” and its mission. “100 Portland” also has a Facebook page.





Hayleigh’s Cherished Charms

2 07 2011

Hayleigh’s Cherished Charms was one of the exhibitors at the annual Hearing Loss Association of America Convention, held last month in nearby Crystal City, Virginia.

HAYLEIGH’S ROCKY START
Before Hayleigh Scott was born, a sonogram revealed that she had a congenital diaphragmatic hernia, which displaced her organs. Her parents, Rachel and Andrew, were given options to terminate one baby, in-utero surgery, or to just “watch and wait.” They opted for the latter, with much prayer and support from family and friends. Her twin, Vienna, was healthy at birth; Hayleigh was not. She was in the ICU for two and half months and had to be quarantined for the first two years of her life. They noticed her hearing loss when she was 18 months old. She was diagnosed with severe-to-profound hearing loss and has been wearing hearing aids (and decorating them!) ever since.

AN ENTREPRENEUR IS BORN
When Hayleigh was five, she decided she wanted to show off her hearing aids with some “bling.” She started drawing sketches with her sisters and a few years later, their mom helped them make the designs into jewelry. With the help of her mother, father, twin sister Vienna and younger sister Sarah, Hayleigh turned this kitchen table venture into a full-fledged business, Hayleigh’s Cherished Charms. She encourages her customers to celebrate their uniqueness by embellishing their hearing aids and cochlear implants and not trying to hide them.

She and her two sisters make all the jewelry, which includes more than 50 hearing aid charms (see sample at left). They also create cochlear implant bling, bracelets, earrings and necklaces. Their newest creations are colorful and fun Tube Twists (shown at right) and Snake Tube Twists. And they’re not just for girly girls (and big girls)—they create charms for boys and tomboys, too! The charms are reasonably priced—from $10 to $25—and shipping on all orders is free in the U.S. and international shipping is just $5. Hayleigh is committed to giving back to the community she serves—ten percent of all proceeds are donated to furthering hearing research and education of the hard of hearing and deaf community.

A PASSION FOR BUSINESS
Her parents then applied for a provisional patent for her invention. A three-year process, this meant she couldn’t wear the charms, promote them or advertise them during that time. Now that’s what I call an extremely patient entrepreneur. Hayleigh and her sisters are so engaging and lively, and their enthusiasm for their products and their business is contagious! As a self-employed person for more than 20 years, I can relate to their joy and enthusiasm for their passion. Their booth was always busy and Vienna later told me that they did really well in their first time as exhibitors at an HLAA Convention.

Audiologist Douglas Beck conducted an interview last year with Hayleigh and her mother about Hayleigh’s hearing loss and her blossoming business for The American Academy of Audiology website. From that interview, I learned that Hayleigh and Vienna are “mirror twins.” I wasn’t familiar with that term until now. It means they have opposite identical features, like left versus right handedness and their hair parts on opposite sides. Read that interview transcript here. Author Maureen Doty Tomasula wrote about Hayleigh in her article, Sharing Her Special Charm, published in The Hearing Journal in September 2009.

SHARING A COMMON BOND
Hayleigh may not know this, but she shares an honor that I was privileged to receive a few years ago. She is the first place winner in the Student Category of the 2010 Oticon Focus on People Award. Congratulations, Hayleigh! I received first place in the Adult Category in 2008. Hearing Loss Magazine editor Barbara Kelley secretly nominated me for the award. Oticon flew all the winners and a guest to Denver for the ceremony, and I wrote about that amazing experience (thanks again, Barbara!) on my blog here.

To continue in the “six degrees of separation” vein, I met my friend and HLAA member Lynn Rousseau while in Denver at the Oticon Awards event. She was a first place award recipient in the Advocacy Category. We became fast friends and her life story was so interesting that I suggested to Barbara that we profile her in Hearing Loss Magazine. She made her cover feature debut in the May/June 2011 issue, which I wrote about here.

I photographed the entire Scott family (including Hayleigh’s adorable cherub of a brother, AJ) at the end of the Convention. Look for Hayleigh and her family in a future issue of Hearing Loss Magazine!

All photos (except product photos) © Cindy Dyer. All rights reserved.